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Parenting a Child with Secondary Dystonia and Cerebral Palsy
26/06/2015
Dystonia: It doesnt Just Happen To Older People.
I'ts not out of a Victorian horror show and its not Frankenstien. It's not science fiction, its Deep Brain Stimulation. I dont know what the lived experience of doing this invasive proceedure is I guess I missed that lecture in my parenting classes. So I am once again on the parenting road less travelled. There are many complex assessment and tests ahead of our son to see if he even meets the baseline for this brain surgery. I guess at this stage you know as much as I do.
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